CEREBRAL PALSY ASSOCIATIONS OF FEDERATION OF BOSNIA AND HERZEGOVINA
www.cpafbih.org
Inclusion of persons with cerebral palsy and inactivity osteoporosis
Association of Persons with child cerebral palsy and muscular dystrophy of Bosnia – Podrinje Canton – Gorazde http://gorazde.ucpd.org
Association Workshop / M. Bajića Baje bb – Vitkovići, Goražde
SATURDAY, January 17, 2015; 10:30 – 15:30 h
Project of the Cerebral Palsy Associations of Federation of Bosnia and Herzegovina Inclusion of persons with cerebral palsy and inactivity osteoporosis is of interest to the whole community and should assist the development of preventive measures, as well as comprehensive strategy to improve the quality of life of the entire population whose families have one or more members with mental and physical disabilities (cerebral palsy). This project is of research, diagnostic and educational type.
On December 13, 2014 were organized measurements, workshops and lectures at the Center “Koraci nade” (Steps of hope) in Tuzla, with Centre service users and of the Association of persons with cerebral palsy and other disabilities “Sapna” and on December 20, 2014 for members of the Association of parents of children suffering from cerebral palsy, hydro and microcephalus “Dlan” (Palm) from Zenica www.dlan.cpafbih.org . Service users were actively involved in these activities. After measuring ultrasonic mineral density of the heel bone, body weight and height, the questionnaire was completed, and given are recommendations for further diagnostics and therapy. The project is financed thanks to the Federal Ministry of Labour and Social Policy. In April 2015 it is expected the final seminar in Sarajevo, with a promotion of the book.
Workshops
1. Family way of life, access to leisure time, educational and social support from the school and the community;
2. The role of physical therapy in the management of spasticity and pain for people with CP;
3. Occupational therapy for people with CP / functional training.
Lectures
1. Prevention of osteoporosis. Movement therapy and inactivity osteoporosis
Special Olympics / orthopedic trolley;
2. Basic principles of modern re/habilitation. The significance of the NGO sector/associations;
Inclusion and quality of life of people with CP and inactivity osteoporosis
3. Sensory disturbances of persons with cerebral palsy.
As osteoporosis is a silent disease, often unnoticed, unrecognized, and often diagnosed only after the bone fracture. Early diagnosis of osteoporosis is significant because of the massiveness of illness, in order to prevent serious consequences and complications such as fractures of the vertebrae, femoral neck or disability. Diagnosis and monitoring of therapeutic effects of osteoporosis treatment is set on the basis of history of illness, clinical examination, additional laboratory and physical examinations.
The inadequacies of the system to support the persons with disabilities in Bosnia and Herzegovina are causing that care for people with disabilities is taken over by a family member, who therefore often has to quit job or does not actively search for a job. Because of the small and inadequate social benefits, the family budget is not sufficient to simultaneously meet the needs of the family and person with disabilities. Disability of a family member often causes poverty of the whole family.
President of the Associations,
Professor Emira Švraka, MD, PhD